Brian rested well last night. He is very quiet these days, but in true Brian fashion, he is still striving to make everyone around him comfortable. Its been a huge and sudden adjustment for all of us because I don’t think anyone will disagree with me when I say, usually, Brian is the smartest person in the room, no matter which room that is.
Brain cancer is so strange, its like an alien invader. Its becoming increasingly harder for Brian to communicate. His response time is slow and he needs small doses of communication to compensate for his delayed ability to process. The constant battle for control of his mind must be so exhausting and frustrating for him. But he is still in there. We notice it in the small things. A chuckle, a smile, a kiss.
My week didn’t quite go as planned, but it ended up okay. They couldn’t do the liver biopsy on Wednesday. The location of the lesion made it too risky. Its way up at the top behind my lung, and right by the hepatic vein. So I met with the GU cancer clinic later that afternoon and I feel like I am in such great hands. The urologist came into the room and said, “wow, kiddo, a lot of people love you.” And I feel it. This whole thing is really falling into place. What initially seemed like horrible timing feels like more of a blessing every day. The surgeon said I could wait a few weeks until life slows down. I tried to talk about it with Brian, but he wasn’t able to tell me what he wants me to do. Kim said that she knows that if he were back to normal, he would want me to have the surgery yesterday.
So the plan as of now is to have a left total nephrectomy and surgical biopsy of the liver lesion. The urologist will be assisted by a liver specialist who is new to our area. Then if the liver lesion looks suspicious they can hopefully treat it right then. If its too risky to treat it surgically, I will have radiation. And I imagine chemo is in my future too, but I forgot to ask. One bite at a time. I meet for a consult with the liver guy on Monday, and surgery will be Wednesday. And my urologist promised to get me home as soon as its safe for me. He also said, “oh, and you WILL get a hernia because I know you aren’t going to take it easy for the 6-9 months it will take to heal, so don’t worry, I can fix that later.”
Thursday was my cancer workup with lots of testing. I feel like I got mostly good news. The bone scan was normal, as was the MRI of my brain. The CT chest showed a small 3mm nodule which could be anything or nothing. They will monitor that to make sure it doesn’t grow. The urologist said its just too tiny to do anything about and the oncologist wasn’t overly concerned. I have to believe since this was a workup for a known cancer, if they thought it was a met, they would have mentioned it. So I’m taking that all as good news.
Think of us on Wednesday, Dandies!
Also, does anyone else find it ironic how similar the words Brian and brain are, and how Lindsey and kidney kind of sound alike too? Maybe its just me. haha